Kidney Health Alliance of Kentucky Inc
1517 Nicholasville Rd
Ste 203
Lexington KY 40503
Contact Information
Nonprofit Kidney Health Alliance of Kentucky Inc
Address 1517 Nicholasville Rd
Ste 203
Lexington, KY 40503
Phone (859) 277-8259
Fax 859 277-2229
Contact Name Pat Ham
Web and Social Media
KHAKY Mascot, Sidney the Kidney, leads the annual Walk with Sidney
At A Glance
Former Names
Kidney Foundation of Central Kentucky
Other ways to donate, support, or volunteer KHAKY accepts donations of time, talent and resources.  Cash donations can be made online or through the mail to our office.  We can also accept credit card donations over the phone.  Donations of time and talents are always welcomed.  To find a place or time that works best, contact the KHAKY office by phone or email.
Financial Summary
Revenue vs Expenses - All Years
Expense Breakdown - Recent Year
Statements
Mission Statement KHAKY serves kidney disease patients and their families, increases awareness and early detection of chronic kidney disease, provides a network for collaboration among healthcare professionals and promotes organ donation.
Background Statement

In September of 1971 the Kidney Foundation of Central Kentucky (KFCK) was established as an affiliate of the National Kidney Foundation (NKF). It was started by a small group of highly dedicated and concerned people whose goal was to encourage and assist in basic research programs and to provide services to patients with kidney disease. Educational programs were also developed to create public and professional awareness. As interest in the Foundation grew, so did the scope of its services and activities. In 1972 the Foundation incorporated under the name Kidney Foundation of Central Kentucky, Inc.

As an affiliate of NKF, KFCK was assigned to 60 counties in central and eastern Kentucky. KFCK remained affiliated with NKF until October of 1986. The decision to withdraw was not easy, nor did it happen without lengthy discussion between KFCK officers and directors and NKF representatives. One of the largest advantages of this decision was the independence it provided and the ability to keep 100% of funds raised for use in programs and services in Kentucky.

In the summer of 2004 KFCK was faced with the challenge of relocating. Thanks in part to several successful years of charitable gaming KFCK was able to purchase a condominium in a doctors park near the University of Kentucky. Around this same time KFCK developed a new logo and website.

In the fall of 2006, KFCK began to rethink its place in the community. Over the years the organization had become increasingly patient and community focused. Though not affiliated with NKF for 20 years, the name of the organization still reflected this affiliation. This led to confusion in the broader community as well as with those who worked with KFCK on a regular basis. After careful consideration the conclusion was made that this name did not effectively communicate the mission or scope of the organization. The organization is not a foundation that funds other groups or research and does not serve exclusively central Kentucky. In an attempt to more clearly distinguish the organization in January of 2007, the board agreed to change the name to Kidney Health Alliance of Kentucky (KHAKY).

KHAKY is a volunteer organization with only one paid staff member. One hundred percent of the money we raise remains in Kentucky to fund programs and services that directly affect our patients and communities.

Impact Statement

KHAKY’s first priority continues to be serving patients with kidney disease in Kentucky. Working with now over 45 dialysis clinics with patients in more than 100 counties, in 2016 KHAKY provided nutritional supplements to 378 patients; a total of 1249 cases of dietary supplements and vitamins. 220 patients qualified financially to receive  up to $10 per month in free product. 748 individuals participated in KHAKY's free kidney health screening program in 2016.  Through a collaborative program with the Donate Life KY Coalition, the new “Life Is Cool” program was presented to over 2000 fourth and fifth grade students in 2016. The program includes 10 stations, each teaching about a different organ/tissue that can be donated to save lives. Emphasis on healthy life choices helps students understand the importance of taking care of our bodies. A new initiative, Get Healthy-Get Transplanted, helped 2 dialysis patients overcome obstacles to qualify for the kidney transplant list. KHAKY hosted its 4th annual Renal Conference in 2016 with over 130 nurses, social workers, dietitians and personal care technicians receiving CE credits. KHAKY also added another affiliate group in 2015. KHAKY is the parent organization for the Kentucky Renal Dietitians and the Kentucky Renal Social Workers.

Needs Statement
KHAKY's patient service programs continue to grow. The addition of renal vitamins and a phosphorus binder has expanded both the popularity of our program and the cost - most patients receiving the vitamins qualify for the $10 assistance. More funds are constantly needed to meet the needs of the dialysis patients.
 
The kidney health screenings are beginning to be more popular and requests for these screenings have been increasing steadily.  Supplies for each individual screening cost nearly $5.00 With the number of requests for screenings increasing,  this cost will be a significant area for increased funding needs.
 
While volunteers make what KHAKY does possible through their generous donations of time and talent, the need to add a part-time assistant is becoming ever more apparent to ensure consistent outcome measurements for our grant support and activity tracking and scheduling for our screenings and other activities. Utilization of internships from UK and EKU have filled the need for now, but cash reserves need to be built to provide the security required to make an additional employment commitment.
 
Continuing to explore possible screening events, expand patient support and develop a program to increase live kidney donation strains operating dollars and the need for developing new revenue generating activities. Every decision is made possible or limited by the resources available.
 
 
CEO/Executive Director Statement Teddy Roosevelt once said, "Far and away the best prize that life offers is the chance to work hard at work worth doing." While managing a non-profit has its challenges, they pale in comparison to the blessing of serving a cause so worthwhile. Kentucky ranks in the top 10 states for the incidence of chronic kidney disease. While it is good that we are now identifying the disease in time to prepare the patient for dialysis - or eventual transplantation if possible - the fact that kidney disease is being identified so late in the progression of the disease means that many kidneys that could have been saved or at least kept functioning longer are not being identified in time. KHAKY is committed to not only serving those who already face the challenges of kidney disease, but to actively support the early diagnosis and treatment of chronic kidney disease to save kidneys! This combines raising awareness of the disease and its major risk factors - diabetes and high blood pressure - with screening for early signs of kidney distress and encouraging primary care physicians and those in the renal healthcare area to more aggressively intervene in the progression of the disease. KHAKY is working on all those fronts to lead the way to healthier Kentucky kidneys.
Geographic Areas Served
Areas
Kentucky
KHAKY currently serves the entire commonwealth of Kentucky with patient services and screenings. Our affiliation with the Kentucky Renal Dietitans and the Kentucky Renal Social Workers has succeeded in taking KHAKY's reach from Pikeville to Paducah..  
Impact Questions
GoalsHelpWhat is the organization aiming to accomplish? This is the organization's ultimate goal for intended impact. KHAKY's ultimate goal, aside from its commitment to help patients on dialysis, is to slow the incidence of kidney disease state wide through education and slow the progression of kidney disease to dialysis or transplantation through early detection. With more than 700 kidney disease patients awaiting a transplant, KHAKY is working to increase access to and information about living kidney donation to increase the number of transplanted kidneys and thereby reduce the number of those on dialysis. 
StrategiesHelpWhat are the organization's strategies for its stated long-term goals?
Life Is Cool and other classroom education programs emphasize healthy life choices, including diet and exercise. Planting seeds for healthier living in the minds of our youth will hopefully help them avoid many of the diseases that can cause or complicate kidney disease: obesity, hypertension and diabetes among others.  
 
The kidney screening program continues to identify kidney distress and possible indicators of kidney disease in patients who had no idea their kidneys needed any attention. This early detection and subsequent intervention can slow and in some cases stop the progression of the disease.
 
Increasing awareness of the need for and process of becoming a living kidney donor is another way to help patients off dialysis. KHAKY is developing an awareness and education initiative to encourage altruistic donors and will be hosting training sessions for those helping  transplant candidates reach out to friends and family members through social media, personal contact and other strategies. 
CapabilitiesHelpWhat are the organization’s capabilities for doing this? What resources, capacities, and connections support its progress towards long-term goals? KHAKY is working to expand its financial capacity through a more formal and intentional focus on attracting and retaining "Alliance" members who share KHAKY's passion and concern about kidney disease and serving the communities that already face it or are at risk for it. A renewing contract of support is being developed for all donor levels. Additionally, grants are being written specifically to support the Living Donor Initiative, the Nutritional Supplement and Get Healthy-Get Transplanted patient programs as well as general operating support grants.
IndicatorsHelpHow will the organization know if it is making progress? What are the key qualitative and quantitative indicators against which the organization assesses its progress toward its intended impact? KHAKY does annual surveys with patients currently participating in KHAKY programs to ensure the value and impact of those programs justifies the cost (both in dollars and in volunteer and staff hours). Kidney screening participants are contacted to discover if they followed up on any abnormal results and if so, what action was taken by their physician. We hope this information will reveal the screenings are successful in identifying CKD in the early stages and that intervention will be taken to slow or stop the disease. We will be monitoring individuals (especially those who altruistically volunteer) who donate kidneys at both UK and Jewish Transplant centers here in KY or who become part of a donor chain to determine if KHAKY's programs were successful in bringing new donors forward.
ProgressHelpWhat has and hasn’t been accomplished so far? True progress in the fight against kidney disease is a long term perspective. Decreases in patients progressing to dialysis or the need for a kidney transplant is our goal. That outcome is also contingent on many factors outside of KHAKY's control and we anticipate the progress toward that end will be slow. But we expect progress.
Board Chair
Board Chair Elaine Milem
Company Affiliation UK Transplant Center
Term July 2016 to June 2018
Board Members
NameAffiliationStatus
Dr. Mary Bell Retired PhysicianVoting
Corey Bellamy RetiredVoting
Dr. Jon Berger UK Transplant CenterVoting
Jennifer Daniel KODAVoting
Wendy Dixie KSUVoting
Deidre Hayden Kentucky American WaterVoting
Lois Hill RDDCI, Inc.Voting
Don Hill RetiredVoting
Alexandria Matz Clark Co. Regional and Bourbon Memorial HospitalsVoting
Elaine Milem UK Transplant NavigatorVoting
Ron Pinchback Kentucky Organ Donor AffiliatesVoting
Caroline Puterbaugh Lexington Center CorporationVoting
Keith Shelton Fresenius Medical CareVoting
Board Demographics - Ethnicity
African American/Black 3
Asian American/Pacific Islander 0
Caucasian 10
Hispanic/Latino 0
Native American/American Indian 0
Other 0 0
Board Demographics - Gender
Male 5
Female 8
Unspecified 0
Governance
Board Term Lengths 3
Board Term Limits 2
Board Meeting Attendance % 85%
Written Board Selection Criteria? No
Written Conflict of Interest Policy? Yes
Percentage Making Monetary Contributions 100%
Percentage Making In-Kind Contributions 100%
Number of Full Board Meetings Annually 12
Board Co-Chair
Board CoChair Corey Bellamy
Company Affiliation Retired
Term July 2017 to June 2019
Standing Committees
Executive
Special Events (Golf Tournament, Walk / Run, Silent Auction, Dinner / Gala)
Program / Program Planning
Nominating
CEO/Executive Director
Executive Director Mrs. Pat Ham
Term Start Jan 2004
Email director@khaky.org
Experience Pat has been director of KHAKY since January of 2004. She holds a Bachelor of Science in Accounting from the University of Kentucky and a Master of Divinity from the Baptist Seminary of Kentucky. Prior to accepting the position as director, Pat was a Regional Vice President for a financial services company for 22 years.
Staff
Full Time Staff 1
Part Time Staff 0
Volunteers 164
Contractors 0
Retention Rate 100%
Management Reports to Board? Yes
Staff Demographics - Ethnicity
African American/Black 0
Asian American/Pacific Islander 0
Caucasian 1
Hispanic/Latino 0
Native American/American Indian 0
Other 0 0
Staff Demographics - Gender
Male 0
Female 1
Unspecified 0
Formal Evaluations
CEO Formal Evaluation Yes
CEO/Executive Formal Evaluation Frequency Annually
Senior Management Formal Evaluation N/A
Senior Management Formal Evaluation Frequency N/A
NonManagement Formal Evaluation No
Non Management Formal Evaluation Frequency N/A
Comments
CEO Comments KHAKY is licensed by CLIA to perform urinalysis for kidney screenings and other exempt laboratory evaluations.
Description
Nearly 400 dialysis patients receive a variety of nutritional supplements through KHAKY each year.  Renal dietitians select a product that will meet the patient's needs and that the patient will enjoy taking.  The dietitian places orders each month for the patients at the clinics they serve.  Through negotiated contracts with manufacturers, KHAKY is able to provide the products at significantly reduced prices.  Those patients who qualify financially can receive up to $10/month discount or select products at no cost.  Nutritional intervention has been clinically proven to reduce hospitalizations, speed healing and improve the overall health of dialysis patients. 
Budget 34000
Category
Population Served Adults, ,
Program Short Term Success
This program has been instrumental in several patients who have used the supplements to improve their ability to tolerate dialysis, stabilize their general health and become eligible for transplant as a result.  While not all dialysis patients are transplant candidates, this is a wonderful benefit for those who are.
Program Long term Success
This program has been in place for more than 10 years.  During that time the emphasis on nutritional intervention has increased due to studies that continue to report the importance of that intervention for dialysis patients in particular and kidney disease patients in general.  Clinics continue to emphasize this as part of their treatment protocal which has increased the interest and participation in KHAKY's program.
Program Success Monitored By
At least quarterly meetings with participating dietitians help ensure the effectiveness of this program.  Periodic evaluations of the formulary offered are also done to evaluate new products that might be added.
Description
Emergency financial assistance is provided to kidney disease patients in crisis.  Renal social workers can request assistance for housing, transportation or prescription medication costs.  Patients can receive up to $200/year in total assistance.
Budget 10000
Category
Population Served Adults, ,
Program Short Term Success
While transition to dialysis is a financial challenge for most patients, living on a fixed and limited income is an ongoing challenge.  KHAKY is the only kidney focused organization in Kentucky that provides financial assistance specifically for kidney disease patients in crisis.  Ensuring that patients meet unexpected increases in utility costs, have access to transportation to and from dialysis until permanent solutions can be found, and be able to get the presecription medications they need by covering co-pays or helping in the Medicare D donut hole, is critical to helping the kidney disease patient survive the challenges of this disease.
Program Long term Success
Helping patients through financial crisis helps reduce stress and assure the patients there are those who care and want to help.  The long term benefit for that is not measurable, but is a real benefit to those in need.
Program Success Monitored By
Annual evaluations of requests continues to show a need for more funds directed to this area.  Some requests must be refused simply due to lack of available funds.  The evaluations also indicate the need to increase the annual limit for assistance.  Again, however, availability of funds becomes the limiting factor.
Description
Chronic kidney disease is a silent disease that progresses undetected for years.  Patients may have no symptoms until as much as 90% of kidney function has been lost.  A kidney specific urinalysis can detect many of the indicators of possible kidney disease as early as Stage 1.  By detecting the disease early, the progress of the disease can be slowed and in some cases stopped entirely.  With the increase in kidney disease and patients on dialysis, it makes sense to provide screenings to help curb the progress of this disease.  KHAKY provides free kidney health screenings at health fairs, civic events and church events.  Employer sponsored screenings are also offered at work sites for employees at a small cost.
Budget 40000
Category
Population Served Adults, ,
Program Short Term Success
Within the past two years, KHAKY has screened almost 600 individuals and has referred a significant number to their physicians for follow-up. 
Program Long term Success
The projected goal for this program is to reduce the number of patients whose kidney disease progresses to the point of total kidney failure, requiring dialysis and/or a kidney transplant.
Examples of Program Success
A volunteer who helps with the kidney screenings decided to screen herself. Unexpectedly the results were concerning.  She followed up with her physician and was referred to a nephrologist.  After further testing she was diagnosed with stage 3 chronic kidney disease.  However, due to early intervention, her disease has stabilized and no further damage to her kidneys has occurred.
Description
KHAKY provides classroom presentations to increase awareness and understanding of kidney disease and organ donation.  KHAKY also provides speakers for classrooms and club and civic events to help educate the public about the disease and the importance of early detection.  Working with other like-minded organizations, KHAKY helps present a program called "Life Is Cool" to 4th and 5th grade students to emphasize the importance of good health and organ donation.
Budget 4000
Category
Population Served Children Only (5 - 14 years), ,
Program Short Term Success
Initial responses indicate that most audiences are not aware of the prevalence of kidney disease or the importance of organ donation.
Program Long term Success
KHAKY's goal is to provide increased awareness that will create patient driven interest in monitoring kidney health and dispel myths about organ donation.
Program Success Monitored By
A formal evaluation program is established for the "Life Is Cool" program.  No formal evaluation program is set for other education activities.
Examples of Program Success
Informal feedback has indicated that most audiences are surprised to learn about the prevalence of kidney disease and the fact that many physicians do not test for the disease unless other risk factors are present.  Learning about the disease has empowered these individuals to ask more questions when meeting with their own personal physician.
Program Comments
CEO Comments
KHAKY provides services to kidney disease patients.The Nutritional Supplement Program offers over 50 products. More than 300 patients participate from over 40 dialysis centers. 
 
One in five Kentuckians has kidney disease; almost double the national average. KHAKY helps raise awareness and promote early detection of kidney disease primarily through kidney health screenings. In the past year over 500 individuals have been screened with more than 25% of those referred for follow up evaluation.
 
KHAKY  works with other like minded organizations to increase effectiveness in achieving shared goals.  As a member of the Donate Life KY Coalition. KHAKY helps promote organ donation and help educate Kentucky's youth about the importance of a healthy lifestyle.
 
Plans & Policies
Organization has a Fundraising Plan? Under Development
Organization has a Strategic Plan? Yes
Years Strategic Plan Considers 3
Date Strategic Plan Adopted Mar 2011
Management Succession Plan? Under Development
Organization Policy and Procedures Under Development
Nondiscrimination Policy Yes
Whistleblower Policy Yes
Document Destruction Policy Yes
Directors and Officers Insurance Policy Yes
Awards
Awards
Award/RecognitionOrganizationYear
Community Service AwardBlue Grass Association of Nutrition and Dietetics2014
Government Licenses
Is your organization licensed by the Government? Yes
Financials
Revenue vs Expenses - All Years
Expense Breakdown - Recent Year
Fiscal Year
Fiscal Year Start July 01, 2017
Fiscal Year End June 30, 2018
Projected Revenue $97,927.00
Projected Expenses $100,341.00
Spending Policy Income Only
Detailed Financials
Revenue SourcesHelpThe financial analysis involves a comparison of the IRS Form 990 and the audit report (when available). Revenue from foundations and corporations may be included in individual contributions when not itemized separately.
Fiscal Year201620152014
Foundation and
Corporation Contributions
------
Government Contributions$0$0$0
Federal------
State------
Local------
Unspecified------
Individual Contributions$30,530$34,129$627,474
------
$9,780$11,735$10,490
Investment Income, Net of Losses$1,800$1,927$1,861
Membership Dues--$410$380
Special Events$32,506$28,843$33,610
Revenue In-Kind------
Other----($2,125)
Expense Allocation
Fiscal Year201620152014
Program Expense--$76,123$93,718
Administration Expense--$10,457$8,131
Fundraising Expense--$5,282$5,065
Payments to Affiliates------
Total Revenue/Total Expenses0.770.841.00
Program Expense/Total Expenses0%83%88%
Fundraising Expense/Contributed Revenue0%8%1%
Assets and Liabilities
Fiscal Year201620152014
Total Assets$95,412$119,026$132,763
Current Assets$20,988$35,033$15,683
Long-Term Liabilities--$5,484$3,200
Current Liabilities$4,670--$3,200
Total Net Assets$90,742$113,542$129,563
Capital Campaign
Currently in a Capital Campaign? No
State Registration Yes
Comments
CEO Comments While maintaining a tight budget, KHAKY continues to explore additional revenue sources to allow expansion of programming and staff support.  Expansion of the Walks with Sidney to other cities across the state has been somewhat successful in both increasing awareness of KHAKY and funds to underwirte programs. As mentioned earlier, developing a more intentional alliance with like-minded organizations and individuals is our emphasis in 2015-2016 to encourage a recurring source of revenue and volunteer support.
Foundation Staff Comments
This organization files the 990EZ. Expense breakdowns were submitted by the organization.
Address 1517 Nicholasville Rd
Ste 203
Lexington, KY 40503
Primary Phone 859 277-8259
Contact Email director@khaky.org
CEO/Executive Director Mrs. Pat Ham
Board Chair Elaine Milem
Board Chair Company Affiliation UK Transplant Center