KENTUCKY CANCERLINK
2425 Regency Road
Suite B
Lexington KY 40503-2947
Contact Information
Nonprofit KENTUCKY CANCERLINK
Address 2425 Regency Road
Suite B
Lexington, KY 40503 2947
Phone (859) 309-1700
Fax 859 368-8418
Contact Name Vicki Booth
At A Glance
Former Names
Ky Pink Link
Kentucky Pink Connection
Other ways to donate, support, or volunteer
If you are interested in donating by mail, please send your check to the address above or to our PO Box 25088, Lexington, KY 40524-5088.
 
KCL also offers many volunteer and internship opportunities.  Please contact our office, and we will mail our volunteer/internship application to you.  You can also visit our website www.kycancerlink.org to access volunteer/internship form as well as obtain information regarding KCL's programs that assist Kentucky cancer patients and cancer survivors, and assist those needing evidence-based cancer screenings.
Financial Summary
Revenue vs Expenses - All Years
Expense Breakdown - Recent Year
Statements
Mission Statement

Kentucky CancerLink, Inc. (KCL) provides support to Kentuckians by reducing and/or eliminating barriers to screening, diagnosis and treatment of cancer.

KCL certified patient navigators (PNs) utilize their patient navigation skills to assist Kentuckians in overcoming barriers to receiving cancer screenings or staying in cancer treatment. The need for this assistance in Kentucky in great: Kentucky has a cancer problem, with the highest incidence of new cancers and highest death rate in the US for all cancers combined, ranking #1 in the US in lung cancer incidences and death; #1 in colon cancer incidences and #4 in deaths; and ranks higher in breast cancer and cervical cancer deaths than the national average. Screening tests help find cancer at an early stage, when survival rates are greater

PNs assess each individual's barriers to obtaining cancer screenings or cancer treatment. PNs engage with individual patients one-on-one, often including their caregivers, family members, social workers and healthcare professionals to create solutions to financial, practical and social challenges. Challenges/barriers may include: cost of screenings, inadequate health insurance coverage, lack of transportation to appointments, language barrier, low literacy, little education, lack of childcare, fear, misconceptions/beliefs related to healthcare. KCL’s programs support primarily uninsured/underinsured Kentuckians with a household income at or below 250% of the Federal Poverty Level. KCL also collaborates with programs offered by healthcare providers, associations, and government entities who may have similar eligibility requirements. Collaborations include access to no-cost/low cost evidence-based cancer screenings for lung, colon, breast, and cervical cancer, access to supplies, services, and other types of assistance to cancer survivors during and following cancer treatment.

 
 
Background Statement

Kentucky CancerLink (KCL) began providing patient navigation services to women in April 2008 for breast and cervical cancer. Grants awarded by the Kentucky Women’s Cancer Screening Program, Kentucky Breast and Cervical Cancer Treatment Program, and the Susan G. Komen Lexington Affiliate provided funding to establish KCL’s patient navigation program. Patient navigation by KCL staff trained as certified patient navigators was the primary means for improving access to recommended breast and cervical cancer screenings, ensuring follow-up support through a cancer diagnosis, and treatment, particularly in medically underserved populations. KCL’s patient navigators ensured that patients did not "fall through the cracks" as a result of a disconnect between health care providers and community-based services.

Since 2008, KCL has provided over 23,000 cancer-related patient navigation services and supplies to over 8,900 Kentuckians in all 120 Kentucky counties. Through collaborative healthcare partners, KCL provided over 1,700 uninsured/underinsured low-income Kentuckians in 66 Kentucky counties with over 2,300 breast cancer screenings, such as mammograms and ultrasounds, at no charge; provided over 2,100 patients in 116 Kentucky counties with over 5,000 $25 gas cards at no charge; provided over 475 patients in 75 Kentucky counties with over 1,200 lymphedema compression garments at no charge; provided over 2,700 free in-home colon cancer screening kits to over 2,000 Kentuckians; established collaborative breast cancer screening programs with KentuckyOne Health and UK Healthcare programs, as well as continuing the utilization of the statewide Kentucky Women’s Cancer Screening Program (KWCSP); participated in the Kentucky Colon Cancer Screening Program (KCCSP), providing patient navigation services for colon cancer screenings, including in-home colon cancer screening kits and colonoscopy scheduling.

In 2014, KCL expanded its mission to include support for ALL cancers. KCL was the recipient of the 2015 i know expo foundation award for non-profit organizations, was featured as the non-profit organization of the month in Lexington TOPS Magazine, June 2016. KCL also received a proclamation from Lexington Kentucky Mayor Jim Gray that June 2016 is #Until Awareness Month: “Until there is a cure for cancer, Kentuckians need help today!”  This has become the KCL mantra.

Impact Statement

KCL certified patient navigators (PNs) utilize their patient navigation skills to assist Kentuckians in overcoming barriers to receiving cancer screenings, continuing cancer treatment, and surviving cancer. eatment. PNs engage with patients one-on-one, often including their caregivers, family members, social workers and healthcare professionals to reduce barriers to care.

The top accomplishments from September 1, 2016, to August 31, 2017 are: Providing temporary financial assistance in the form of transportation, medications, and other personal needs to over 400 Kentuckians; providing access to no-cost/low-cost breast and colon cancer screenings to over 880 Kentuckians, and providing no-charge cancer-related supplies to nearly 200 Kentucky cancer survivors.

The top goals are to obtain additional funds for KCL programs, enabling KCL to help more Kentuckians more often. Our #1 patient request is for transportation assistance in the form of “gas cards’ and no-cost/low-cost local transportation. Our goal is to meet the need for these monthly requests. Our #2 patient request is for compression garments for lymphedema, which are fitted to the patient, ideally replaced every 6 months, and not covered by health insurance. A top goal is to expand the hours of our bilingual interpreters to assist more Hispanics in obtaining cancer screenings and assistance during and following a cancer diagnosis. Our overall goal is to help more Kentuckians receive timely cancer screenings and cancer treatment, saving lives.

Needs Statement

The most pressing need relates to KCL’s organizational stability. The yearly total of patients served continues to grow; however, due to funding constraints, KCL has periodically reduced patient navigators' work hours.

The second need is for transportation assistance of patients to cancer screenings or cancer treatments. The patient demand for transportation assistance exceeds the KCL resources available each month, requiring KCL to reduce the funds available and occasionally to “suspend” the gas card/taxi voucher program.

The third need is for arm and/or hand compression garments for lymphedema. The garments are worn daily, replaced every six months, rarely covered by health insurance. Due to funding constraints, KCL has not always been able to meet the patient need for these garments.

The fourth need is for occasional temporary financial assistance from KCL, paid to the provider/vendor, such as assisting with the cost of a prescription, childcare, utility bill, rent.

The fifth need is for fundraising support, including fundraising events. KCL is continually searching for: 1) third-party organizations to sponsor KCL fundraisers; 2) an organization to hold a fundraising event to benefit KCL; 3) volunteers who are experienced fundraisers to assist in KCL fundraising.

CEO/Executive Director Statement

In the nine years that Vicki Booth has been Executive Director of Kentucky CancerLink, she and the rest of the KCL organization have been exposed to the best of times and some very difficult times of providing direct patient services. So much more could be done to improve the lives of families and individuals if we increase investment in our local non-profit organizations.

At Kentucky CancerLink, we see the benefits to individuals receiving transportation assistance, childcare assistance, and other types of assistance in order to obtain cancer screenings or to continue cancer treatment. Through timely, low-cost preventive cancer screenings, cancer can be detected at early stages, when survivorship rates are the most favorable. When cancer patients have the ability to complete cancer-related tests and treatments as scheduled, their bodies can fight cancer more quickly and effectively.

Non-profit organizations and their dedicated staffs have the knowledge, passion, and programs to transform lives and strengthen our communities. It is up to each of us to help ensure that organizations like Kentucky CancerLink have the financial support to maximize their impact.

Additional funding is always needed on order to help more Kentuckians more often. At Kentucky CancerLink, the need for assistance, including temporary financial assistance and cancer-related supplies, often exceeds the funding available to meet those needs. At times, there is a waiting list for assistance or one of our assistance programs is temporarily suspended until additional funds are received.

Your generosity in the form of donations will help ensure that Kentucky CancerLink can continue our mission to provide hope to our neighbors across the Commonwealth of Kentucky. UNTIL there is a cure for cancer, Kentuckians need help TODAY. Your support of Kentucky CancerLink and the Kentuckians we serve can improve the lives of the most vulnerable.

Board Chair Statement

In 2008, with a spark of passion and experience in servicing breast cancer patients through her mastectomy boutique, Vicki Blevins Booth founded Kentucky Pink Connection, a nonprofit organization focusing primarily on breast cancer. As the months progressed with this successful program, Vicki and her patient navigators realized that there was a great need to assist Kentuckians needing other types of cancer screenings and support from the time of their cancer diagnosis, through treatment and survivorship. Therefore, support for other types of cancer was gradually added to the program. By 2014, the organization formally changed its name to Kentucky CancerLink (KCL) and formally expanded its mission to reflect its support for all types of cancer.

Again, as a state, Kentucky has a serious cancer problem: Kentucky has the highest rate of new cancers and highest death rate for all cancers combined in the U.S. Kentucky ranks #1 in the US in incidence and death rates from lung cancer, ranks #1 in incidence rate for colon cancer, and #4 in the death rate for colon cancer. Kentucky has the second-highest rate of adult smoking in the US. It is generally accepted that smoking can cause a variety of cancers, in addition to lung cancer.

It has been said by many that cancer is not a disease for 'sissies.' It’s a pathway that should never be traveled alone, a journey that should be shared. Knowing that you need to have a cancer screening or additional procedures because there is an issue; or because your doctor suggests that due to your age, it is time to begin a cancer screening process is somewhat embarrassing to many. Others do not want to admit that they do not have the funds necessary to have the screening because of the loss of a job or lack of health insurance. They put on a strong face and say, “Ah, there is nothing wrong with me!” With your help, we can reach and assist these individuals.

Cancer does not discriminate: It breaks down a person dignity, it robs you of your appearance, it brings you to your knees, and it can destroy families physically, psychologically, socially, as well as financially; or fighting cancer can bring the family and friends closer together. KCL wants to be able to provide support to these individuals with funds raised through community support. Providing someone with a gas card to help them get to cancer-related appointments, providing mastectomy prosthetics to restore a person’s dignity, or just connecting them to an opportunity to receive no-cost/low-cost cancer screenings can give a person additional self-confidence and peace of mind. KCL can do this and so much more with your help. Your donation and financial support will help someone right here in Kentucky.

I dare say that cancer affects everyone, if not you personally, then perhaps a family member, or perhaps a close friend or a neighbor. Through early detection we can provide a ray of hope that cancer has been detected early enough to prevent the spread of cancer or eliminate it all together. Until there is a cure for cancer, Kentuckians need help today. Missy Jolliff, Board President

Service Categories
Secondary Organization Category Diseases Disorders & Medical Disciplines / Cancer
Tertiary Organization Category Education /
Geographic Areas Served
Areas
Kentucky
The Kentucky CancerLink, Inc. is a statewide program.  The physical office is located in central Kentucky. The address is 2425 Regency Rd., Suite B., Lexington, KY 40503.  Kentucky CancerLink serves Kentuckians in all 120 Kentucky counties.
Impact Questions
GoalsHelpWhat is the organization aiming to accomplish? This is the organization's ultimate goal for intended impact.

The ultimate goal of Kentucky CancerLink, Inc. (KCL) is reduce the incidence of and death from cancer.  One way is to increase the number of underserved Kentucky residents who receive initial and yearly preventive cancer screenings, so that cancer is detected earlier when survivorship rates are greater, rather than detected at later, more serious stages of cancer. 


Secondly, to reduce the cancer death rate, KCL’s goal is to keep cancer patients in treatment, following their treatment recommendations and schedule. Transportation to chemotherapy and radiation treatments and to tests and doctor visits relating to their cancer is often one of the greatest barriers to receiving treatment.

A third goal is more adequately provide compression garments to lymphedema, whose swelling in their arm/glove causes discomfort and pain, and inability to function normally.

Fourth, the demand for temporary financial assistance to pay rent, utility bills, medications, food, and to meet other personal needs of cancer survivors from diagnosis, during and after completing cancer treatment far exceeds the KCL funding available to meet those needs.

The ultimate goal of increasing KCL funding substantially through donations, grants, and fundraisers will help provide critical services to patients.

StrategiesHelpWhat are the organization's strategies for its stated long-term goals?

Kentucky CancerLink (KCL), formerly known as Kentucky Pink Connection, was established in April 2008 with the mission to promote evidence-based early detection of cancer and eliminate barriers Kentuckians face to being screened and to staying in and completing cancer treatments. All full-time staff are certified patient navigators from the Harold P. Freeman Patient Navigation Institute and other institutions offering patient navigation programs and certification.

The concept of patient navigation was founded and pioneered by Dr. Harold P. Freeman in 1990 for the purpose of eliminating barriers to timely cancer screening, diagnosis, treatment, and supportive care. It has since evolved to include the timely movement of an individual across the entire health care continuum from prevention, detection, diagnosis, treatment, and supportive, to end-of-life care - See more at: www.hpfreemanpni.org.

Kentucky CancerLink plans to reach new patients and existing patients to help assure that they obtain the appropriate no-cost/low-cost cancer screening(s) on a timely basis and that cancer patients and survivors receive the support and services they need to continue treatment and/or receive the supplies they need during or following cancer treatment, such as wigs, headwear, mastectomy items, or compression garments.

KCL will expand participation in community events and health fairs to educate more Kentuckians on the importance and availability of cancer screenings. At those venues, KCL will not only collect patient information in order to facilitate the individual’s cancer screening appointment(s) with collaborative healthcare partners, but KCL will also distribute free at-home colon cancer screening kits to qualified individuals. KCL currently also follows up with patients every month whose last at-home colon screening kit was completed by them a year ago, encouraging them to participate again and to mail them another kit.

As funding allows, KCL will add additional bilingual in-house navigators to increase not only their participation in community events that attract Hispanics but also to follow up by phone to those Hispanics are referred to KCL for cancer screenings or assistance during treatment, but also to follow-up with those existing KCL Hispanic clients who are due for an annual cancer screening.

KCL management will continue to promote and publicize KCL patient navigation programs and serviced provided through on-site meetings at healthcare and community organizations, increased distribution of marketing materials, and increased advertising through printed publications and electronic communications.

As funding allows, KCL will also extend the work hours of KCL in-house patient navigators to handle the increased workload due to increased patient volume.

 

CapabilitiesHelpWhat are the organization’s capabilities for doing this? What resources, capacities, and connections support its progress towards long-term goals?

Kentucky CancerLink has unique strengths and capabilities.  The most important strength is KCL’s staff of certified patient navigators (PNs) who are “lay navigators.” KCL PNs assist patients in accessing cancer care and navigating health care systems, including helping individuals obtaining no-cost/low-cost cancer screenings or obtaining assistance during or following a cancer diagnosis and treatment.  PNs assess barriers to care and engage patients, families, and caregivers in creating potential solutions to their financial, practical and social challenges.  PNs identify appropriate and credible resources responsive to patient needs (practical, social, physical, emotional, spiritual), taking into consideration reading level, health literacy, culture, language, and amount of information desired.

For physical concerns, emotional needs, or clinical information, patient navigators refer to licensed clinicians. KPC navigators follow up with patients as needed, in order to remove barriers and to provide additional services and supplies available through KCL or third parties that relate to their cancer screening(s), diagnosis, treatment, and survivorship.

Patient navigators provide one-on-one guidance and assistance to individuals primarily face-to-face (one-on-one) or by phone: Again, the principal function of the navigator is to eliminate barriers to timely screening, diagnosis, treatment, and supportive care for each individual. KCL also has bilingual staff members to support those whose primary language Spanish. KCL also utilizes an external language interpreter service to interpret Spanish as well as many other languages.

Another capability of KCL is the daily utilization of our customized Microsoft Access database to capture not only each patient’s needs and demographic information but also to capture details regarding each service provided directly by KCL, by collaborative healthcare partners, and by other external resources. This electronic documentation enables timely, accurate follow-up with patients.

KCL works with collaborative healthcare partners to enroll patients in no-cost/low-cost cancer screenings, primarily for breast, cervical, colon, and lung cancer on a daily basis, as well as to enroll patients in special screening programs offered at different times of the year, some of which target specific ethnic or minority groups.

KCL PNs have also been trained to test at-home colon cancer screening kits that patients have utilized and follow-up with the patients and their physician regarding screening results and next steps.

IndicatorsHelpHow will the organization know if it is making progress? What are the key qualitative and quantitative indicators against which the organization assesses its progress toward its intended impact?

Utilizing an outside technology service, in 2010 Kentucky CancerLink (KCL) installed its customized Microsoft Access patient tracking database so that KCL can easily track and report on all services offered to each patient.  Reports can be generated and customized as needed for internal use, collaborative partners, grantees, and other interested parties.


Over time the database has been updated, to allow additional flexibility in entering different types of data and creating reports. As recently as mid-2017, additional KCL patient navigator tasks, additional categories of patient data, and additional types of detailed and summary ad hoc reports were added to reflect added KCL services and support. Reports produced from the database can be summarized in many ways, such as by date range, type of service, type of supply item, type of cancer screening, by cancer type, by grant, etc.

Reports can easily be generated to list specific patients and services provided or summarize the number of patients served during a specific time period by KCL. As the number of patients served and the number of services provides continues to grow, the end result is an increased KCL staff workload year after year. Reports also show that the number of Hispanics served each year has grown, due to in-house Spanish interpreters and increased participation in Hispanic community events. KCL will continue to monitor and report on the numbers of patients assisted and the services provided based on KCL’s needs and the other interested parties’ requirements.

In addition to being able to capture data daily, monitor progress over time, and report results as needed, KCL conducts an annual patient satisfaction survey. Survey data is compiled and reported along with patient comments/feedback included on the survey form. Throughout the year many thank-you cards and notes are received from patients who appreciate the support, services, and supplies received from KCL.

KCL meets with and collaborates with many city, county, regional, and state organizations, such as the Kentucky Cancer Consortium, the Kentucky Cancer Registry. the Kentucky Cancer Program, the American Cancer Society, and many Kentucky healthcare providers to seek guidance on how and where KCL efforts should be most concentrated in order to have the greatest positive health impact in Kentucky.

ProgressHelpWhat has and hasn’t been accomplished so far?

Based on reporting from our MS Access database, from Sept, 1, 2016 to Aug, 31, 2017, KCL has assisted over 570 Fayette County patients in obtaining 750 cancer screening services, including over 150 pap tests for cervical cancer screenings, over 230 breast cancer screenings, and directly provided over 300 at-home colon cancer screening kits. During that same period, cancer patients were received over 300 services and supplies, including transportation assistance, temporary financial assistance, prescription assistance, wigs, mastectomy items, compressions garments, and referrals to other regional and national organizations for financial assistance and to help with other personal needs.

Number of patients served and number of KCL services provided will continue to increase yearly, as more patient self-referrals and other types of referrals are received and KCL services are provided. At times, due to funding constraints, KCL is unable to meet some of the financial needs, such as transportation assistance. KCL’s Access database will capture and report services provided, as well as those temporary “suspended” due to lack of funds, as well as patient outcomes.

KCL’s patient navigation program goals are to obtain additional funding through grants, donations, and KCL and/or third party fundraisers to more adequately meet patient needs. With additional funding, KCL would be able to extend PN’s hours to provide additional patient navigation services: 1) More PN time would be spent in community outreach to emphasize the importance/availability of no-cost/low-cost cancer screenings and the availability of no-cost services and supplies available through KCL ; 2) Public awareness/education of cancer screenings available through collaborative healthcare partners and KCL and residents’ knowledge of KCL services would increase through more newspaper, magazine, TV, radio, social media advertising; 3) Number of existing patients and new patients screened per year would increase based on increased public awareness, more self- and third-referrals, and PN follow up with an ever-growing number of existing KCL patients.

KCL anticipates the number of Fayette County patients screened to increase by 15% due to additional patient navigation resources, including additional bilingual PN staff time to support Hispanic patients.

KCL expects a 10% increased enrollment of Fayette County residents into Freedom From Smoking program due to additional public awareness.
Board Chair
Board Chair Mrs. Missy Jolliff
Company Affiliation Senior Business Analyst Toyota Tsusho America, Inc.
Term Apr 2017 to Mar 2020
Board Members
NameAffiliationStatus
Ms. Charity Barnes General Manager, Information Systems, Toyota Tsusho America, Inc.Voting
Ms. Elisa Burkhart Lexington Arthur Murray
Mrs. Lois Davis RN, MSNRetired, Fayette-County Health Department
Mrs. Peggy Henderson Principal, Edythe J. Hayes Middle SchoolVoting
Mrs. Missy Jolliff Sr. Business Analyst, Toyota Tsusho AmericaVoting
Ms. Sneha Kalyan CPA, Internal Auditor and Business Analyst, Blue Grass AirportVoting
Ms. Peggy Lacy Moore Former Executive Director, Kentucky Board of Respiratory CareVoting
Ms. Cindy Gevenden Praska Interior DesignerVoting
Ms. Roanya Rice MBA, BSN, RNPublic Health Officer, Lexington-Fayette County Health DepartmentVoting
Mrs. Doris Rosenbaum Survivor, Community VolunteerVoting
Mrs. Jacky Samaan-Space Specialty Sales Professional, INSYS Therapeutics, Inc.Voting
Ms. Peggy Wheeler RN, OCN, CBPNOncology Nurse Navigator, Baptist HealthVoting
Mr. Bryan Willett Chief Information Security Officer, Lexmark InternationalVoting
Board Demographics - Ethnicity
African American/Black 1
Asian American/Pacific Islander 0
Caucasian 10
Hispanic/Latino 0
Native American/American Indian 0
Other 0 1 Indian
Board Demographics - Gender
Male 1
Female 12
Unspecified 0
Governance
Board Term Lengths 3
Board Term Limits 2
Board Meeting Attendance % 85%
Written Board Selection Criteria? No
Written Conflict of Interest Policy? Yes
Percentage Making Monetary Contributions 100%
Percentage Making In-Kind Contributions 100%
Constituency Includes Client Representation Yes
Number of Full Board Meetings Annually 6
Additional Board Members and Affiliations
NameAffiliation
Ms. Peggy Barnes Accredited Advisor of Insurance, Certified Professional Insurance Woman, Diversity Advanced Educator
Ms. Eleanor Broaddus Breast Health Coordinator, Lexington Clinic
Ms. Carolyn Durham Past Chairman, Newsletter Editor and Communication person for the Thursday Breast Cancer Support Group/Survivor
Ms. Robin Fisher Staff Support Associate, University of Kentucky Markey Cancer Center
Dr. Rachel Harper Hematology/Oncology, John D. Cronin Cancer Center
Ms. Victoria Meyer Retired, Nurse Health Educator, Baptist Health HealthwoRx
Dr. Kim Stigers St. Joseph Breast Center-Radiologist
Ms. Barb Thompson Baptist Health
Comments
CEO Comments

KCL welcomes individuals interested in supporting our mission as members of our Board, our Advisory Board, as volunteers, we are eager to include additional survivors of cancer, community leaders and individuals join in supporting our mission in the way they feel they would be most effective. Our most pressingly need, as always, is for additional funding support for KCL patient navigation services and transportation assistance for Kentuckians needing cancer screenings, cancer treatment, including support following completion of treatment.

Individuals with one or more of the following personal attributes and work experiences would be tremendous assets to KCL programs: Those who have experience and successes in applying for grants, or establishing and managing profitable fundraising activities, or speaking effectively at public venues, or participating actively as a leader/organizer at community events, or educating the public on health-related topics, or having work experience in a healthcare environment, or working with less fortunate individuals one-on-one, or having and utilizing a variety of office skills, technology skills, and people skills to simplify work activities, having the ability to effectively manage projects. An individual with one or more of these attributes would all be a valuable asset to KCL programs and the Kentuckians that we serve.

CEO/Executive Director
Executive Director Vicki Booth
Term Start Apr 2008
Email vickib@kycancerlink.org
Experience

Vicki Blevins Booth has over 24 years of business experience with over 17 years, specifically in the cancer arena. Previously, Vicki was the owner and manager of VDK Turning Point, a specialty boutique with products designed for women fighting breast cancer. She is a certified mastectomy and prosthetic fitter and is certified in lymphedema therapy. In 2008 as KCL Executive Director, she became a certified patient navigator through Dr. Harold P. Freeman’s Patient Navigation Institute; in 2015 she completed the George Washington Cancer Institute's Oncology Patient Navigator Training.  


To sustain its mission, KCL has been innovative in establishing fundraisers that not only provide additional funds, but also educate the public on funding needs. Vicki Booth has been innovative in developing unique fundraisers such as “Hot Seat for Hope” and “I Dance For Hope.” In 2016, Vicki established a partnership with the Lexington Health Department to facilitate the American Lung Association’s Freedom From Smoking program.

In June 2016, Lexington Mayor Jim Gray proclaimed that June was the beginning of KCL’s on-going campaign “#Until there is a cure for cancer, Kentuckians need help today.”

In 2012, UK HealthCare partnered with the Bluegrass Chapter of the American Red Cross to present its 2012 Hero of the Year to Vicki Blevins Booth. This award recognizes individuals doing extraordinary things to improve lives in the Bluegrass area. In 2012, Vicki was also recognized with the Fayette County Health Hero Award. In 2015, the i Know Expo Foundation presented Kentucky CancerLink with their annual foundation award for an exemplary non-profit organization. In April 2016, KCL, along with the University of Kentucky, was selected as one of 24 groups to present a topic at the 18th Prevent Cancer Foundation Conference in Baltimore, MD. In June 2017, Vicki Blevins Booth was honored by the Lane Report as one of eight top women in business in Kentucky.

Co-CEO
Co-CEO Not Applicable Not Applicable
Term Start Apr 2012
Staff
Full Time Staff 3
Part Time Staff 4
Volunteers 30
Contractors 0
Retention Rate 100%
Management Reports to Board? Yes
Staff Demographics - Ethnicity
African American/Black 0
Asian American/Pacific Islander 0
Caucasian 6
Hispanic/Latino 1
Native American/American Indian 0
Other 0 Volunteers come from diverse backgrounds
Staff Demographics - Gender
Male 0
Female 7
Unspecified 0
Senior Staff
Title Patient Navigator
Experience/Biography

Toni has received patient navigation training, including education and training on products and services available from KCL and through patient navigation certification programs in order to provide services to patients, including:  Received certified patient navigation training through Harold P. Freeman Patient Navigation Institute in 2013; on a daily basis, provided patient navigation services to cancer patients, their families and caregivers; Counseled people throughout Kentucky who contacted KCL by phone, email, at health shows, through medical referrals, and in person with insurance and personal difficulties they faced in obtaining cancer screening or as a result of a cancer diagnosis; Provided patients with financial assistance to obtain wigs, medicines, and medical supplies; arranged patient’s transportation to medical facilities; provided financial assistance and advice in helping pay or reduce medical and doctor bills; Worked with many Kentucky medical facilities, including clinics, county health departments, Kentucky area hospitals. and breast centers to make appointments for breast exams, mammograms, and other tests related to breast cancer screening, diagnosis and treatment; Trained new patient navigation staff on office procedures, equipment, software, patient-oriented processes, services, support; Trained interns and volunteers to help with short-term special projects, health fairs, fundraising.

Title Patient Navigator
Experience/Biography

Kimberlee received KCL patient navigation training from Harold P. Freeman Patient Navigator Institute in 2009 to become certified patient navigator, later followed by additional patient navigation certification from George Washington Institute and Patient-Centered Education & Research Institute. On a daily basis, provides patient navigation services to cancer patients, their families and caregivers; Counsels Kentuckians who have contacted KCL by phone, email, at health shows, through medical referrals, and in person with insurance and personal difficulties they face in obtaining cancer screening or as a result of a cancer diagnosis; provide patients with financial assistance to obtain wigs, medicines, and medical supplies; arranges patient’s transportation to medical facilities; provides financial assistance and advice in helping pay or reduce medical and doctor bills; works with many Kentucky medical facilities, including clinics, county health departments, Kentucky area hospitals. and breast centers to make appointments for breast exams, mammograms, and other tests related to breast cancer screening, diagnosis and treatment; Trains new patient navigation staff on office procedures, equipment, software, patient-oriented processes, services, support; train interns and volunteers to help with short-term special projects, health fairs, fundraising.

Title Patient Navigator
Experience/Biography

Since 2013, Carla Washnock has been a Patient Navigator at Kentucky Cancer Link. She graduated from the University of Kentucky with a BS in Dietetics in 1996 and spent 10 years counseling patients at a Lexington radiation clinic.

Carla received KCL patient navigation training and certification from both the George Washington Institute and Patient-Centered Education & Research Institute. She is the lead patient navigator regarding colon cancer screening, including identifying Kentuckians who are in need of screenings, including at-home colon cancer screenings and/or colonoscopies, testing patients’ stool samples and reporting individual results to patient and physician, and creating summary results of cancer screenings.

Carla also fulfills all the responsibilities of a patient navigator at KCL: She provides patient navigation services to cancer patients, their families and caregivers; counsels Kentuckians who have contacted KCL by phone, email, at health shows, through medical referrals, and in person with insurance and personal difficulties they face in obtaining cancer screening or as a result of a cancer diagnosis; provide patients with financial assistance to obtain wigs, medicines, and medical supplies; arranges patient’s transportation to medical facilities; provides financial assistance and advice in helping pay or reduce medical and doctor bills; works with many Kentucky medical facilities, including clinics, county health departments, Kentucky area hospitals. and breast centers to make appointments for breast exams, mammograms, and other tests related to breast cancer screening, diagnosis and treatment; Trains new patient navigation staff on office procedures, equipment, software, patient-oriented processes, services, support; train interns and volunteers to help with short-term special projects, health fairs, fundraising.

Formal Evaluations
CEO Formal Evaluation Yes
CEO/Executive Formal Evaluation Frequency Annually
Senior Management Formal Evaluation Frequency Annually
Non Management Formal Evaluation Frequency N/A
Comments
CEO Comments
Due to an unexpected decrease in grant funding in 2016 and KCL's 2014 expansion to support all cancer,  Kentucky CancerLink's biggest challenge is finding new ways to secure funding.  Additional grants are being pursued and Kentucky CancerLink continues to promote its own additional fundraising events, as well as third party fundraisers that benefit Kentucky CancerLink. The majority of the time spent by KCL patient navigators remains to be in providing direct client/patient support to Kentuckians needing evidence-based cancer screenings and services and support following a cancer diagnosis. Other staff members work part-time in marketing and grant writing, to develop additional sources of financial support of KCL programs.
Description
Trained, certified KCL patient navigators (PNs) provide assistance to Kentuckians in need of preventive cancer screenings and those in need of support, services, and supplies following a cancer diagnosis, throughout their cancer treatment and survivorship.  As funding is available, KCL's Patient Navigation Program provides limited, temporary financial assistance, primarily for cancer patients whose household income is at or below 250% of the Federal Poverty Level. This assistance is often needed due to reduced income or job loss during cancer treatment, and the patient is having difficulty paying bills.
 
KCL PNs provide assistance one-on-one to patients and/or their caregivers to assess and help reduce barriers and meet patients' needs through KCL resources and external resources, such as social workers; community action; local churches and local support groups; city, county, state organizations and government entities; state and national organizations supporting cancer patients.
 
 
 
Budget $ 200,000
Category Health Care, General/Other Early Intervention & Prevention
Population Served Poor,Economically Disadvantaged,Indigent, People/Families of People with Cancer, Minorities
Program Short Term Success

KCL monitors/reports number of clients served and services provided by KCL and external resources based in internal needs, collaborative healthcare partner requirements, and grant reporting requirements. PNs use a daily followup system, utilizing both its customized Microsoft Access database and patient folders. PNs use those processes to contact patients needing annual cancer screenings, screening results and next steps.

KCL is diligent in following up with patients, including making three attempts to contact by phone, mailing letters, including certified letters, if necessary.

Short-term success is often based on year-to-year comparisons of the number of patients who obtained screenings and the number and type of assistance provided to cancer patients, such as supplies, financial assistance, personal needs, and other types of assistance. Success is also measured against KCL funds available. From 9/1/16 to 8/31/17, over 1,400 patients received over 2,300 services.

 
 
Program Long term Success

Long-term success will be measured by a reduced rate of cancer incidences and deaths in Kentucky, and by a reduced number of deaths due primarily to smoking. Overall mortality rates will decrease from the current rate of 13.3 per 100,000 to below 13. Special attention will be paid by KCL and by other concerned parties to those counties with a higher rate than the Kentucky average. Those counties will receive more focus, including increases in the number and frequency of community health-oriented events, additional programs available, increased publicity though printed publications, outdoor advertising, and through a variety of education venues. This increased public awareness will provide additional community interest in the importance of early cancer detection through timely no-cost/low-cost cancer screenings. Programs such as transportation assistance, evening or weekend access to healthcare programs will also help individual’s overcome barriers to obtaining cancer screenings.

Program Success Monitored By

PNs maintain meticulous records on each patient with whom they interact. The information is entered into KCL’s customized database where various reports can be generated on an as needed basis based on a variety of parameters. KCL will be able to report on exactly which patient and how many were helped and what types of services they each received. The status of each service is updated as PNs contact patients, such as “in progress”, “cancelled”, “last attempt”, “completed.” PNs are also able to add general notes for each patient, as well as notes pertaining to a specific service or supply item.

A survey card is mailed along with no-charge supplies, such as wigs, mastectomy items, and compression garments to encourage patient feedback.

In addition, a survey is sent to a statistically valid random sample of the patients served each year to ascertain how they rated the assistance provided by KCL and asking for any comments or suggestions.

Examples of Program Success

Mary Lee noticed her arm was swelling, and learned she had lymphedema as a result of her breast cancer surgery in 2012. Her insurance had no coverage for lymphedema therapy or the garments needed to treat the condition. KCL provided her with the needed sleeve and glove at no charge and has provided them for her every year.


Debbie was diagnosed with breast cancer, had a double mastectomy, and discovered that her insurance would not cover the cost of the mastectomy items. At KCL she was fitted for the bras and breast forms she needed. KCL supported Debbie during treatment with wigs and turbans as she experienced hair loss.

With KCL assistance, Susana obtained a no-cost mammogram in 2017. She was asked return for additional views, had a biopsy indicatig breast cancer, and later had surgery to remove her right breast. As a mother of three children with no health insurance, she was grateful to have obtained her breast cancer screening, resulting in her cancer being detected early.

Description
KCL offers a Transportation Assistance Program that provides no-cost transportation to Kentuckians whose household income is at/below 250% of the Federal Poverty Level and are in need of this assistance in order to obtain preventive cancer screenings or cancer-related treatments and tests. This program provides gas cards, local taxi transportation, and other no-cost/low-cost transportation options where available. The amount of transportation assistance is dependent on monthly funding.  Each month there is typically a wait list for transportation assistance because adequate funding is not available.  Patients are asked to contact KCL regarding transportation assistance to appointments for the month during the week prior to that month. Requests for transportation assistance later in the month are often not met due to limited KCL funds available. Transportation assistance is KCL's #1 request: patients often travel long distances for chemotherapy treatments and travel often for radiation.
Budget 30,000
Category Health Care, General/Other Early Intervention & Prevention
Population Served Poor,Economically Disadvantaged,Indigent, People/Families of People with Cancer, Minorities
Program Short Term Success

KCL has had short-term success over the years in providing transportation assistance to patients in order for them to obtain cancer screenings or cancer-related treatment. KCL has utilized a local taxi company for transportation within the Lexington and Louisville areas. KCL has provided $25 gas cards to those travelling beyond their county, primarily for cancer-related treatment appointments. Typically those receiving radiation treatments do not travel far, but travel often, and KCL can help with transportation for a small number of radiation trips per person. Chemotherapy appointments occur less often, over a longer period of time, and patients typically travel beyond their county.

By KCL providing transportation assistance, the patient is more likely to make it to their appointment and afford to meet other financial obligations.

KCL has also used third-party services, primarily the American Cancer Society’s Road to Recovery which uses volunteers to provide local transportation.

Program Long term Success

The transportation assistance program has been our most often used program. Since its inception in 2008 through 7/31/17, over 2,300 patients in 116 of the 120 Kentucky counties have received over 5,900 services, either a gas card, taxi ride, or other low-cost/no-cost local transportation. The number of patients served and the number of transportation services provided varies with KCL funding available, which varies from month to month and year to year. The highest numbers were in 2015, with over 820 patients receiving almost 1,800 transportation services. Unfortunately, in 2016, 403 patients received 564 services; 2017 numbers will likely be lower due to lack of KCL funds for the program.

KCL’s goal is to help meet this #1 demand for assistance through increased donations and fundraising later in 2017, as well as additional grant funding in 2018.

Program Success Monitored By

Like the Patient Navigation Program, PNs maintain meticulous records on each patient with whom they provide transportation assistance. The information is entered into KCL’s customized database where various reports can be generated on an as-needed basis based on a variety of parameters. KCL is able to report on exactly which patients and how many patients were helped with transportation assistance by date. Each occurrence of assistance is documented as PNs contact patients, such as “in progress”, “cancelled”, “completed.” PNs are also able to add general notes for each patient, as well as notes pertaining to the reason for transportation assistance each time the assistance is provided to the patient.

KCL often receives thank-you cards from patients who have received transportation assistance, since this is a critical need for many patients and their caregivers.

Examples of Program Success

There are many examples of this program’s success. Transportation assistance to patients helps them obtain cancer screenings and complete cancer treatment. Missing appointments can be catastrophic and dangerous for the patient, worsening their health and reducing their chance of cancer survivorship. Patients who are too sick to drive or do not have a reliable vehicle often rely on someone else to drive them, such as a caregiver, family member, taxi driver, volunteer driver. Most of these drivers would either appreciate or demand a contribution for their gas and/or time.

KCL receives many transportation requests not only from patients and their families, but also from social workers and doctors’ offices. There are very few organizations that provide no-cost transportation; KCL helps fill part of that gap. Most people would agree that transportation to get to appointments, whether for a medical appointment or any other type of appointment, is critical.

Program Comments
CEO Comments

As with most non-profit organizations, KCL’s biggest challenge is the funding to provide services and products requested. In addition, we have a small staff to process all the patients requests for assistance. We are currently looking for grant opportunities and other funding opportunities that will provide funding for patient services and staff support. We are always looking for opportunities to partner with other similar non-profits to band together and maximize support of cancer patients.

KCL also partners with the Fayette County Health Department to facilitate the American Lung Association’s Freedom From Smoking Program. As most people realize, smoking is dangerous to one’s health and can increase an individual’s chance of being diagnosed with many different types of cancer as well as heart and lung diseases.

Fortunately, there are other organizations that provide support to uninsured/underinsured individuals needing cancer screening(s) and to new diagnosed cancer patients and well as those going through long periods of cancer treatment. KCL PNs refer patients to many of these organizations, who may provide one-time or once-a-year financial assistance to those who meet their program guidelines, such as household income levels. Others, such as churches, community action organizations, clubs, and associations provide limited financial assistance or products and services that help meet the patient’s basic needs.

Unfortunately, there are never enough resources to help everyone who is at risk for cancer or has been diagnosed with cancer. KCL is committed to doing its part to contribute to the health and well-being of Kentuckians. With additional funding from other generous individuals and organizations, KCL will continue its mission. Until there is a cure for cancer, Kentuckians need help today!

Plans & Policies
Organization has a Fundraising Plan? Yes
Organization has a Strategic Plan? Under Development
Years Strategic Plan Considers 5
Management Succession Plan? Under Development
Organization Policy and Procedures Yes
Nondiscrimination Policy Yes
Whistleblower Policy Yes
Document Destruction Policy Yes
Collaborations
Lexington Fayette County Health Department
American Cancer Society
Kentucky Cancer Program
Kentucky Susan G. Komen for the Cure
Kentucky Women's Cancer Screening Program
Baptist Health
UK Markey Cancer Center
KentuckyOne Health
(state-wide health departments and hospitals)
Free health clinics
HealthFirst Bluegrass
Bluegrass Community Health Center 
 
Awards
Awards
Award/RecognitionOrganizationYear
Public Health Hero of the YearLexington Fayette County Health Department2012
Red Cross Volunteer of the YearFayette County American Red Cross Chapter2012
Twenty Women Leading Kentucky honoring Vicki Blevins - founderTwenty Women Leading Kentucky2012
Kentucky ColonelCommonwealth of Kentucky2012
The Lane ReportTop Eight Women in Business In Kentucky2017
Government Licenses
Is your organization licensed by the Government? No
Financials
Revenue vs Expenses - All Years
Expense Breakdown - Recent Year
Fiscal Year
Fiscal Year Start Apr 01, 2017
Fiscal Year End Mar 31, 2018
Projected Revenue $157,439.00
Projected Expenses $141,586.00
Spending Policy Income Only
Detailed Financials
Revenue SourcesHelpThe financial analysis involves a comparison of the IRS Form 990 and the audit report (when available). Revenue from foundations and corporations may be included in individual contributions when not itemized separately.
Fiscal Year201620152014
Foundation and
Corporation Contributions
------
Government Contributions$18,936$0$0
Federal------
State------
Local$18,936----
Unspecified------
Individual Contributions$255,217$289,523--
------
------
Investment Income, Net of Losses--$72$90
Membership Dues------
Special Events$22,887$1,171--
Revenue In-Kind------
Other------
Expense Allocation
Fiscal Year201620152014
Program Expense$273,835$297,319$268,110
Administration Expense------
Fundraising Expense------
Payments to Affiliates------
Total Revenue/Total Expenses1.080.981.03
Program Expense/Total Expenses100%100%100%
Fundraising Expense/Contributed Revenue0%0%--
Assets and Liabilities
Fiscal Year201620152014
Total Assets$58,050$32,029$43,569
Current Assets$58,050$32,029$43,569
Long-Term Liabilities$2,490--$4,987
Current Liabilities$2,818$2,492$2,492
Total Net Assets$52,742$29,537$36,090
Capital Campaign
Currently in a Capital Campaign? No
State Registration Yes
Comments
CEO Comments

Throughout this past year, our organization has faced many financial challenges: Maintaining funding for our expanding programs which since 2014 include all cancers remains our biggest hurdle. We continue to seek additional grant opportunities, and we are very thankful to our community and third party supporters who have assisted us with third party events, as well as provided funding as sponsors of KCL-fundraising events.

KCL certified patient navigators assist Kentucky men women who are in need of preventive cancer screenings, and those who need assistance following a cancer diagnosis. The Kentuckians we serve are primarily uninsured/underinsured/underserved, with a household income at or below 250% of the Federal Poverty Level. When a member of one of these groups is diagnosed with cancer, it is often a severe blow to the family financially, as well as physically, mentally, and socially. The need is great to provide the cancer patient with temporary financial assistance, such as transportation assistance to cancer-related appointments, household expenses, even food. Requests for these types of assistance are received daily by KCL. Unfortunately, KCL has been unable to meet all these needs on a monthly basis.

Donations to help KCL support Kentuckians, along with grant funding and fundraising are keys to enabling KCL to help more Kentuckians more often.

Foundation Staff Comments
The 2009 Form 990 was the initial return for Kentucky Pink Connection, so no previous financial information is available.
 
Address 2425 Regency Road
Suite B
Lexington, KY 405032947
Primary Phone 859 309-1700
Contact Email vickib@kycancerlink.org
CEO/Executive Director Vicki Booth
Board Chair Mrs. Missy Jolliff
Board Chair Company Affiliation Senior Business Analyst Toyota Tsusho America, Inc.