DOWN SYNDROME ASSOCIATION OF CENTRAL KENTUCKY INC
1050 Chinoe Rd., #204
LEXINGTON KY 40502
Contact Information
Nonprofit DOWN SYNDROME ASSOCIATION OF CENTRAL KENTUCKY INC
Address 1050 Chinoe Rd., #204
LEXINGTON , KY 40502
Phone (859) 494-7809
Contact Name Traci Brewer
Web and Social Media
Life is Good!
At A Glance
IRS Ruling Year 2003
Other ways to donate, support, or volunteer
Donations can be made from our website, by phone, or by mailing donation to 1050 Chinoe Rd., #204, Lexington, KY 40502.  Items donated for our live and silent auction are always appreciated. Volunteer opportunities and volunteer application are available on our website, www.dsack.org.
Financial Summary
 
 
Statements
Mission Statement

To celebrate and support people with Down syndrome and their families and to educate ourselves and others throughout Central and Eastern Kentucky.

Background Statement

The Down Syndrome Association of Central Kentucky (DSACK) proudly celebrates serving families and community members of Central Kentucky since 1993. DSACK was created by a small group of parents who envisioned better opportunities for their children with Down syndrome. Today that vision has expanded, and we are pleased to provide many programs and services to area families, schools and medical professionals. 

In 2002, as DSACK became more visible in the community, the first Buddy Walk was organized. This was a huge success and has continued to be a tradition of DSACK families, not only as a fund-raising event but also as a day set aside to celebrate our loved ones. In 2013, we changed the name of our walk to Walk for Down Syndrome, and we hosted more than 2,000 walkers in downtown Lexington!

DSACK is a 501(c)(3) organization governed by a board of directors, which includes parents, educators, therapists and medical professionals. We have an executive director responsible for implementing our strategic plan and maintaining day-to-day operations.  Our meeting minutes and monthly treasurer reports are open for review by anyone.

Impact Statement
We support and educate families and professionals in Central and Eastern Kentucky. We do this by hosting expert speakers to address pertinent topics regarding Down syndrome for parents, teachers, therapists and medical professionals.  We now offer these presentations via webinar to allow families who are unable to travel to our office the ability to participate in these informational session. We also publish a bi-monthly magazine with a calendar, inspirational stories, celebrations of our own community, and helpful information and resources, and announcements.  We host an early math and literacy program for children in grades K-3rd and their parents.  DSACK routinely offers interactive presentations to school-age children re:  acceptance of those with Down syndrome and other disabilities. We also speak with college students majoring in the fields of medicine, education, and various therapy programs on best practices and to give them first-hand insight from families who have children with Down syndrome. Our families and friends enjoy attending  at least four annual celebrations hosted by DSACK offering support and advocacy for our constituents.  These are just a few of the great things happening at DSACK.  To see the full range of our services, check out our calendar at www.dsack.org.  
 
Needs Statement Our organization would not be possible without the generosity of our donors.  We do not charge our families for any programs we offer, asking them only to help raise funds at our annual Walk for Down Syndrome.  We rely solely on private donations from individuals and corporations. Volunteers are also a vital part of our organization and the continuation of the programs we offer.  
CEO/Executive Director Statement

Our family's journey with Down syndrome began 17 years ago with a prenatal diagnosis for our daughter.  We were given the diagnosis over the phone by a nurse.  No information was offered or given.  At that time, the Internet was not available, we knew of no other families who shared this diagnosis, and we did not know there was a support group in Lexington.  We knew Emily would be born with a small hole in her heart, but all indications were that it was relatively small and would possibly close on its own.

On Dec. 5, 1997, Emily Faith was born.  They showed me her beautiful face and whisked her away.  As it turned out, her heart was much worse than expected.   She was much too weak to nurse or take a bottle, and due to risk of infection, we could not take her anywhere except home and doctor visits. Extended family and friends were not able to hold our precious girl and would leave gifts and food on our front porch, as we could not ask them to come in. Going back to work for me became an impossibility, as we entered the world of feeding tubes, failure to thrive, cardiology appointments, emergency room visits and frequent overnight stays at the hospital.  Emily did have open-heart surgery when she was 3 months old.  We had many complications and spent many nights sleeping on the floor of the waiting room.  Since that time, she has had more than 15 surgeries.  Some have been major, some have been minor.  She has had bilateral hip surgery and been in a full body cast twice. 

Why do I tell you all of this? Because I want you to understand the journey that led me to become so passionate for individuals and families living with Down syndrome. I never want another family to feel isolated, scared and alone because they do not know about DSACK. It is important to me that the medical community knows we are here and ready to partner with the family that has just received a Down syndrome diagnosis. I want our schools to know that our children are bright and capable. Educators and medical professionals must know that we have the same dreams for our children as any other parent. I want our teenagers and young adults to be recognized by our communities as exceptional employees: loyal, hardworking and dependable. Before their precious child starts kindergarten, I want every mom and dad who have a sleepless night to know that they can call someone within this support group who will tell them that all will be well. Every parent who has tried every bottle and spent countless hours at speech therapy but still can’t get their baby to eat can be put in touch with a parent who has been through a similar experience. I don’t want our loved ones to be one of the statistics for loneliness and depression because they do not have a circle of friends as young adults. Lifelong friendships between families can begin at DSACK. The child struggling in school or parent struggling with their child’s IEP can find resources and experience here. The list goes on and on!

There is much to be done, and I can’t wait to see how it all unfolds as we forge new ground and claim bright futures for our loved ones.

Service Categories
Secondary Organization Category Civil Rights, Social Action, Advocacy / Disabled Persons' Rights
Tertiary Organization Category Education / Special Education
Geographic Areas Served
Areas
Kentucky
Central and Eastern Kentucky, including but not limited to:
Fayette County
Scott County
Jessamine County
Clark County
Woodford County
Boyle County
Mercer County
Garrard County
Lincoln County
Bourbon County
Laurel County
Johnson Kentucky
Madison County
Estill County
Franklin County
Pike County
Anderson County 
Pulaski County
Clay County
Whitley County 
 
 
 
 
Impact Questions
GoalsHelpWhat is the organization aiming to accomplish? This is the organization's ultimate goal for intended impact.
Our vision is for people with Down syndrome to live in communities where they are valued and included throughout their lifetime.  People with Down syndrome are accomplishing so much everyday, things many thought would never be possible.  We believe by educating families, professionals and communities, people with Down syndrome will continue to accomplish even more amazing feats in the future. By changing the perception of teachers, doctors and employers, we can make certain that these capable individuals become contributing and valued members of their society.
 
Families need not fear the unknown or isolation which was too common in years past.  DSACK families and friends come together for many events to celebrate this extra chromosome and the uniqueness of their loved ones.  We also advocate within our schools and government to help change antiquated attitudes and myths about the abilities of those with Down syndrome.  By teaching best practices, giving balanced information and creating a network of support, we can ensure a bright future for those born with Down syndrome and their families. 
StrategiesHelpWhat are the organization's strategies for its stated long-term goals?
 
Each month we host "Coffee Chats" inviting speakers to come speak to our families on topics relative to Down syndrome.  We believe by being informed is the best way to empower us to advocate for people with Down syndrome.  We have covered topics such as special needs estate planning; ear, nose and throat health, parent panels, research updates, etc. 
 
 
 We publish a bimonthly magazine for families, professionals and community sponsors to announce upcoming events, acknowledge accomplishments, and provide inspiration.
 
 
 
We speak to medical students and therapy students to share our experiences as families raising a child with Down syndrome, so that they may gain insight into our high expectations and dreams for our loved ones.
 
We routinely visit classrooms of school-age children offering an interactive presentation to teach children the facts about Down syndrome, how to be a friend with someone who has Down syndrome, and tolerance for those who have different abilities. 
 
This year we launched our We Work! job skills program for teenagers and young adults with Down syndrome. Six students graduated from this training and are not working one-on-one with a training specialist to assist them with career exploration, internships, and college classes.
 
In addition we offer art classes, dance classes, a bike riding camp, and much more. 
 
Developing relationships among our families is essential.  In order to build these relationships, we have several celebrations to bring our families from all over the state together.  We also inform our communities about these celebrations through media outlets, as a form of advocacy to reshape attitudes about the potential of our loved ones with Down syndrome.
 
 
 
 
 
CapabilitiesHelpWhat are the organization’s capabilities for doing this? What resources, capacities, and connections support its progress towards long-term goals?
We have an amazing board of directors including teachers, professors, doctors, therapists, and family members. These passionate board members provide the necessary expertise and experience to help determine and accomplish our goals. We hold ourselves to a high standard of values and believe in total transparency within our organization.
Our dedicated families are a huge asset to our community.  They give of their time, knowledge and resources to our organization.  Our major fundraiser is our annual Walk for Down Syndrome.  Our families have increased our participation and donations every year since it's inception.
Until recently, we were an all volunteer organization.  Due to the passion of our families to increase the funds raised annually, we now have a full-time Executive Director  and three part-time staff persons dedicated to achieving our new goals.  
IndicatorsHelpHow will the organization know if it is making progress? What are the key qualitative and quantitative indicators against which the organization assesses its progress toward its intended impact? Over the past year, we have seen higher attendance at our events and much more involvement from our constituents.  We measure our success by the issues we proactively address regarding Down syndrome and our ability to ensure our families needs are being met from birth to adulthood.  With the addition of new programs, we are addressing needs ranging from prenatal information, education, employment, relative topics on therapies, obesity and health.  We are encouraged by the interest in our new webinar program which allows us to reach families in Eastern Kentucky who may not be able to travel to our office for every speaker or presentation.  We continue to increase our funds, a majority of which comes from our annual Walk for Down Syndrome.  Community sponsorship has increased, and because our families value our organization, monies raised by individual families/teams continue to increase.  Our Executive Director reports monthly to the board on progress and accountability of programs and events.  Input from our constituents is always welcome and sought after, as well as expert guidance from our board members.
ProgressHelpWhat has and hasn’t been accomplished so far? By obtaining funding for much needed programs to address employment, inclusion and health issues, we are able to offer more strategic programming addressing the major obstacles for those with Down syndrome and their caregivers.  We have moved beyond broad-based programs such as social activities and annual events to specific programming to ensure we are meeting the needs of our constituents from birth to adulthood.
Board Chair
Board Chair Ms Danon Camic
Company Affiliation Fayette County Public Schools
Term June 2015 to June 2018
Board Members
NameAffiliationStatus
Mr. Aaron Andreasson ParentVoting
Mrs. Melissa Ball R.N., BSNParent and Retired NurseVoting
Mrs. Carrie Cannady Therapeutic Sales Specialists at Gilead SciencesVoting
Dr. Jay Castenada Georgetown UniversityVoting
Ms. Angel Clark ParentVoting
Mrs. Mary Ann Hall Big Brothers/Big SistersVoting
Ms. Katherine Hastings Doctoral Student and Research Assistant at University of KentuckyVoting
Mrs. Shelley Sellwood-Davis Assistant Director,Stewart Home School
Mrs. Becky Toth Financial Assistance Advisor for Kentucky Higher Education Assistance AuthorityVoting
Mrs. Gretchen Vaught Consultant at Smith Communication PartnersVoting
Board Demographics - Ethnicity
African American/Black 0
Asian American/Pacific Islander 0
Caucasian 13
Hispanic/Latino 0
Native American/American Indian 0
Other 0 0
Board Demographics - Gender
Male 0
Female 13
Unspecified 0
Governance
Board Term Lengths 3
Board Term Limits 2
Board Meeting Attendance % 67%
Written Board Selection Criteria? Yes
Written Conflict of Interest Policy? Yes
Percentage Making Monetary Contributions 100%
Percentage Making In-Kind Contributions 100%
Constituency Includes Client Representation Yes
Number of Full Board Meetings Annually 6
Board Co-Chair
Board CoChair Mrs. Andrea Kruchinski
Company Affiliation Staff Attorney at Office of Legal Services, Insurance Division
Term June 2015 to June 2018
CEO/Executive Director
Executive Director Mrs. Traci C. Brewer
Term Start Jan 2014
Email traci.dsack@gmail.com
Experience Parent of a child with Down syndrome.  Served as a volunteer and board member, including chairperson, of DSACK for over 10 years.  Was instrumental in writing current bylaws, policies and procedures for the organization.  
Staff
Full Time Staff 1
Part Time Staff 2
Volunteers 100
Contractors 0
Retention Rate 90%
Management Reports to Board? Yes
Staff Demographics - Ethnicity
African American/Black 0
Asian American/Pacific Islander 0
Caucasian 3
Hispanic/Latino 0
Native American/American Indian 0
Other 0 0
Staff Demographics - Gender
Male 0
Female 3
Unspecified 0
Formal Evaluations
CEO Formal Evaluation Yes
CEO/Executive Formal Evaluation Frequency Annually
Senior Management Formal Evaluation Yes
Senior Management Formal Evaluation Frequency Annually
NonManagement Formal Evaluation Yes
Non Management Formal Evaluation Frequency Annually
Description Unemployment figures for individuals with an cognitive disability are staggering.  Too many adults with a disability remain unemployed and undervalued within their community.  We have found that parents/caregivers are not given accurate or pertinent information to successfully make a meaningful transition from high school to employment.  Our program works with students and adults, as well as their families/caregivers, to teach them the skills needed to obtain and keep employment, and to help them discover their strengths and abilities that can be emphasized by meaningful employment.  Not only will this benefit individuals with Down syndrome but also their community, as they learn that people with Down syndrome are loyal, hardworking employees who can contribute greatly to their community.
Budget $10,000.00
Category
Population Served , ,
Description We offer several events of celebration and advocacy throughout the year, including World Down Syndrome Day, Christmas party, summer picnic, and fall event. This is a time for our families to be encouraged and empowered. These events also provide excellent opportunities to include neighbors, friends, teachers, and community partners as a way to acknowledge the potential and accomplishments of those with Down syndrome.
Budget $7,500.00
Category
Population Served , ,
Description
DSACK hosts experts monthly to  address topics of interest to professionals who work with individuals with Down syndrome, as well as families.These monthly presentations are also made available via webinar for those who are unable to travel to our office.
DSACK Learning Program is an early math and literacy using best practices to teach children with Down syndrome and empowering their parents to become stronger advocates and educators for their children. 
 We distribute booklets and brochures to doctors and hospitals regarding best practices when delivering a diagnosis of Down syndrome. New parent packets are delivered to area hospitals with gifts and information to be given to the new parents.  
We publicize our events through many different media outlets to raise community awareness. Events such as our World Down Syndrome celebration and annual Walk for Down syndrome have gained wide recognition and support.
DSACK provides presentations and information to teachers and students regarding the facts about Down syndrome and how to be a friend to those with Down syndrome.
Our bimonthly professional magazine is distributed free of charge to families, professionals and community partners with helpful information, inspirational articles, accomplishments of our own, and beautiful pictures of our loved ones and families.  
Budget $65000
Category Education, General/Other
Population Served , ,
Description Many individuals with Down syndrome require hospitalization and even surgery for different conditions that are common to those born with Down syndrome. This fund was established for families who have a loved one with Down syndrome who is hospitalized.  Gifts, food vouchers, parking vouchers and gas vouchers can be provided to families that qualify during this difficult time.  
Budget $5,000.00
Category
Population Served , ,
Program Comments
CEO Comments
One of our largest challenges has been how to reach families in Eastern Kentucky.  Many of these families are unable to travel to our location for activities.  In order to disseminate useful information addressed via our monthly speaker series, we have begun offering these presentations via webinar.  This allows everyone to hear the information and participate during the discussion.  We have received excellent feedback so far, from our families that have taken advantage of this service.
 
The future for students after high school has also been a huge area of concern.  Too few of our young adults are supported and/or encouraged to find employment meaningful to them.  Our We Work! program will allow teens and young adults to explore different career opportunities and learn the skills necessary to obtain employment and contribute to their communities.
 
Another challenge we face is how to ensure doctors are giving balanced and accurate information to new parents receiving a diagnosis of Down syndrome for their child.  Because we cover such a large area, it has been difficult to develop relationships with doctors, staff, hospitals and social workers to make sure families are receiving our information. We now have a medical outreach representative to begin building relationships with the medical community and distributing the most recent information and guidelines re:  Down syndrome.
 
 
Plans & Policies
Organization has a Fundraising Plan? Under Development
Organization has a Strategic Plan? Yes
Years Strategic Plan Considers 3
Date Strategic Plan Adopted Mar 2014
Management Succession Plan? No
Organization Policy and Procedures Under Development
Nondiscrimination Policy Yes
Whistleblower Policy Yes
Document Destruction Policy No
Government Licenses
Is your organization licensed by the Government? No
Fiscal Year
Fiscal Year Start Jan 01, 2016
Fiscal Year End Dec 31, 2016
Projected Revenue $183,630.00
Projected Expenses $183,630.00
Spending Policy Income Only
Detailed Financials
Revenue SourcesHelpThe financial analysis involves a comparison of the IRS Form 990 and the audit report (when available). Revenue from foundations and corporations may be included in individual contributions when not itemized separately.
Fiscal Year201520142013
Foundation and
Corporation Contributions
------
Government Contributions$0$0$0
Federal------
State------
Local------
Unspecified------
Individual Contributions$23,578$147,830$128,751
------
$134,708----
Investment Income, Net of Losses$764$831$541
Membership Dues------
Special Events--$2,941--
Revenue In-Kind------
Other------
Expense Allocation
Fiscal Year201520142013
Program Expense$111,516$64,944$69,054
Administration Expense$22,302$27,350$10,467
Fundraising Expense$14,870$23,986$15,436
Payments to Affiliates------
Total Revenue/Total Expenses1.001.301.36
Program Expense/Total Expenses75%56%73%
Fundraising Expense/Contributed Revenue63%16%12%
Assets and Liabilities
Fiscal Year201520142013
Total Assets$240,288$224,168$188,846
Current Assets$240,288$224,168$182,556
Long-Term Liabilities------
Current Liabilities$15,758----
Total Net Assets$224,530$224,168$188,846
Form 990s
2015 990
2014 990
2013 990 2013
2012 990EZ 2012
2011 990EZ 2011
2010 990EZ 2010
2009 Form 990
2008 Form 990
Audit Documents
2014 Audited Review
Capital Campaign
Currently in a Capital Campaign? No
Capital Campaign Anticipated in Next 5 Years? No
State Registration Yes
Address 1050 Chinoe Rd., #204
LEXINGTON , KY 40502
Primary Phone 859 494-7809
Contact Email traci.dsack@gmail.com
CEO/Executive Director Mrs. Traci C. Brewer
Board Chair Ms Danon Camic
Board Chair Company Affiliation Fayette County Public Schools