LEXINGTON AREA PARKINSON DISEASE SUPPORT GROUP INC
P.O. Box 4424
Lexington KY 40544-4424
Contact Information
Nonprofit LEXINGTON AREA PARKINSON DISEASE SUPPORT GROUP INC
Address P.O. Box 4424
Lexington, KY 40544 4424
Phone (859) 277-1040
At A Glance
Other ways to donate, support, or volunteer Both monetary and in-kind donations are needed.  Checks can be mailed to the address listed.  In-kind donations can be arranged; for example, our newsletter, Parkinson's Voice, is sponsored by Comfort Keepers, Inc.  Other volunteer opportunities can be discussed.
Financial Summary
 
 
Statements
Mission Statement
The Lexington Area Parkinson Disease Support Group helps persons with Parkinson's Disease, their families, caregivers, and friends find hope and encouragement.  This is achieved through:  sharing experiences, problems, and solutions; gaining knowledge of Parkinson's Disease and how to cope with it; maintaining general health through exercise, diet and regimen; sharing social activities; building public and professional knowledge and understanding of Parkinson's Disease.
Background Statement
The Lexington Area Parkinson's Disease Support Group Inc. (LAPDSG) officially became a 501 (c) (3) organization in 1979.  The group's origin, however, began earlier in 1978.  The brother-in-law of one of the founders was diagnosed with Parkinson's, about which the majority of the population knew little if anything about this movement disorder called Parkinson's.  The founder and a friend began researching both Parkinson's Disease and the organization and function of support groups.  They traveled to several states to investigate and visit Parkinson's support groups.  Their research and on-site visits validated the need for a similar support group in the Lexington area.  The support group began with fewer than ten participants meeting in a church. Thus, the LAPSG came into being.  The appropriate documents were filed with state and federal agencies, and the necessary Letter of Nonprofit Determination was received.  From this background, currently more than 271 individuals are on our mailing list, and LAPSG has established programs that meet weekly, biweekly, and monthly, with a 100% volunteer core of leaders.  Donations have been the sole source of funding as dues are never charged. 
Impact Statement
This organization consistently focuses on programming that is directly beneficial to persons with Parkinson's Disease, their families, friends, and caregivers. One top accomplishment is the establishment of weekly exercise/yoga and weekly aquatic classes, with some 25-30 different participants. For caregivers, we conducted our first Caregivers Retreat in 2012 which 35 caregivers attended. A second annual Caregiver's Retreat is scheduled in 2013. In addition, the monthly support groups meet, one for persons with Parkinson's Disease and one for caregivers. Monthly educational programs have continued and were very relevant and well attended. Another significant accomplishment has been, finally, the monthly publication of a newsletter, Parkinson's Voice. Sponsorship of this newsletter by a home health agency was secured. This newsletter is mailed directly to the 200 plus families on our membership roster. Another noteworthy achievement was the establishment in 2012 of a monthly support group in Somerset. Obtaining sponsorship of selected educational programs by a pharmaceutical firm was a financial accomplishment.  Our organization received a $10,000 grant from an anonymous donor in 2012, and an additional $15,000 donation for 2013 from this individual.  Financial goals include searching for funding and establishing our portrait on Good Giving. Developing and maintaining sponsorship by pharmaceutical firms remains a goal. In programming, we hope to develop 1 or 2 new classes for our members. At their request, we also hope to establish a support group in another county, as well as maintain the Somerset group. Adding a family social event might be considered.  In management, following our July election of Officers and Directors, committee chairmen will be appointed.  Therefore, our impact is evidenced by the enhanced quality of life and more informed Parkinson's community.
Needs Statement
Five needs have been identified:  (1) more volunteers; (2) increase financial support; (3) expanded programs; (4) management training; and (5) increase the general public's knowledge of Parkinson's.  These five needs are interdependent, the first two being building blocks from which the other three could evolve. 
(1) We do not have a pool of volunteers because participants come from more than 30 cities/towns. Therefore, active participation and leadership are limited.
(2) Increased financial support would allow more health professionals and Parkinson's experts to be utilized to benefit the Parkinson's community.  Rental fees for additional program space, if needed, could be available for expanded programming.  Educational articles and relevant publications could be obtained for distribution.
(3)  Expanded programming solely depends on the two prior needs.
(4)  Identifying additional volunteers who indicate an interest and who demonstrate leadership abilities could validate training sessions conducted by professionals versed in 501c3 operations.  The result could be improved services to the Parkinson's community.
(5)  Reaching the general population to increase Parkinson's awareness could be done through all media sources, but all carry cost. We will continue to seek ways and means to meet this need.
Service Categories
Secondary Organization Category Public & Societal Benefit / Alliances & Advocacy
Tertiary Organization Category Education / Educational Services
Geographic Areas Served
Areas
Fayette County
Woodford County
Jessamine County
Scott County
Madison County
Montgomery County
Harrison County
Mercer County
Anderson County
Bourbon County
Clark County
Marion County
Green County
Pike County
Pulaski County
Warren County
Taylor County
Johnson County
Logan County
Franklin County
Russell County
Laurel County
Board Chair
Board Chair Martin Ginocchio
Company Affiliation Lexington Fayette County Urban County Government
Term Oct 2012 to Sept 2013
Board Members
NameAffiliationStatus
Davis Gardner Community VolunteerVoting
Elaine Keith Commmunity VolunteerVoting
Tina Peter Community VolunteerNonVoting
Jack Pramuk Community VolunteerVoting
Kathy Scheiner Community VolunteerVoting
Susan Short Community VolunteerNonVoting
Dorothea Tate Community VolunteerVoting
Doug Windle Community VolunteerNonVoting
Board Demographics - Ethnicity
African American/Black 0
Asian American/Pacific Islander 0
Caucasian 9
Hispanic/Latino 0
Native American/American Indian 0
Other 0 0
Board Demographics - Gender
Male 3
Female 6
Unspecified 0
Governance
Board Term Lengths 1
Board Term Limits 0
Board Meeting Attendance % 89%
Written Board Selection Criteria? No
Written Conflict of Interest Policy? No
Percentage Making Monetary Contributions 78%
Percentage Making In-Kind Contributions 100%
Constituency Includes Client Representation Yes
Number of Full Board Meetings Annually 4
Standing Committees
Communications / Promotion / Publicity / Public Relations
Education
Program / Program Planning
Membership
Special Events (Golf Tournament, Walk / Run, Silent Auction, Dinner / Gala)
Audit
Comments
CEO Comments
The LAPDSG has had two formal bases for governance: (1) The Articles of Incorporation, which are on file with the Secretary of State and; (2) Regulations of the LAPDSG, Inc.
     In reality, the group effectively functions in a more informal manner.  The core of volunteer leadership has served in approximately ten year cycles with the exception of the President, who has served for seventeen years.  The founder also served for a similar extended period. 
     An annual meeting is held and the election of Officers and Directors.  Officers and the Directors meet frequently to take care of programmatic and financial items as necessary.  Committees function as needed. 
     In summary, our organization has survived since 1979, growing from fewer than ten to our current roster of 271.  This roster is very fluid as some are no longer involved with Parkinson's and others are added who are now in the Parkinson's community.  We have functioned with varying degrees of efficiency with completely volunteer leadership and participation by the Parkinson's community.  Concensus on how this organization can best provide support, hope, encouragement, and information to those with Parkinson's and those who are caregivers, family, and friends, appears to be the strong factor in our governance. 
CEO/Executive Director
Executive Director All Volunteer
Term Start Oct 2012
Staff
Full Time Staff 0
Part Time Staff 0
Volunteers 20
Contractors 0
Retention Rate 0%
Management Reports to Board? N/A
Staff Demographics - Ethnicity
African American/Black 0
Asian American/Pacific Islander 0
Caucasian 0
Hispanic/Latino 0
Native American/American Indian 0
Other 0
Staff Demographics - Gender
Male 0
Female 0
Unspecified 0
Formal Evaluations
CEO Formal Evaluation N/A
CEO/Executive Formal Evaluation Frequency N/A
Senior Management Formal Evaluation N/A
Senior Management Formal Evaluation Frequency N/A
NonManagement Formal Evaluation N/A
Non Management Formal Evaluation Frequency N/A
Description
Educational presentations by guest speakers that address various concerns and needs of the Parkinson's community
Budget $600
Category Education, General/Other Educational Programs
Population Served Families, People/Families of People with Health Conditions,
Program Short Term Success
Indicators of short term success are the responsiveness of the audience and
post program informal discussion with the speaker and among participants during social hour.
Program Long term Success
Indicators of long term success are the continued increase in attendance of our educational series and in the small group activities.  The ultimate goal of our programming is increased awareness of the disease and enhancement of  coping and living with Parkinson's.
Program Success Monitored By
Informal assessment
Examples of Program Success
Increased attendance and participation plus informal feedback of those attending
Program Comments
CEO Comments
     Parkinson's is a chronic progressive neurologic movement disorder/condition.  Some 1.7 million Americans and 12,000 Kentuckians have been diagnosed with this disease.  Data indicate that 700+ Kentuckians will be diagnosed in 2013. 
     All studies conclude that people with Parkinson's benefit with increased knowledge of Parkinson's, and that support groups are beneficial to add understanding, encouragement, and support to those with Parkinson's, their families, friends, and caregivers.  Proven examples of support groups' effectiveness can be found in any number of support groups such as Alcoholics Anonymous, Alzheimer's, weight loss, etc.
     The LAPDSG began in 1979 and became a 501c3 organization in 1997.  Initially a small group met to exchange information, helpful hints, and mainly to assure each individual that "he/she was not alone" in coping with this movement disorder/condition.
     Currently, our organization provides eight educational programs each year.  Separate small group meetings for caregivers and families, and for those with Parkinson's are held ten times each year.  In addition, a weekly therapeutic yoga/exercise session and a weekly aquatic program are conducted.  We have assisted establishing a support group in another city.  We continue mentoring that group.  The potential for a similar situation exists in another city.  Additionally, educational programs are conducted which focus on specific areas such as PD 101, medical management of prescribed drugs, and caregivers.  An annual Caregivers Retreat is held each summer.
     Numerous participants voluntarily and continually testify to how much these sessions and groups mean to them.  Comaraderie develops as each person comes to understand more clearly both Parkinson's and that they are not alone.  Help is available. 
     The reasons that support groups are beneficial appear to be met to a significant degree by the LAPDSG.  Our organization desires to become better known and better funded in order to do more to assist those in the Parkinson's community.
Plans & Policies
Organization has a Fundraising Plan? No
Organization has a Strategic Plan? No
Management Succession Plan? No
Organization Policy and Procedures No
Nondiscrimination Policy No
Whistleblower Policy No
Document Destruction Policy No
Collaborations
Bluegrass Area Agency on Aging, Cardinal Hill Rehabilitation Hospital, Comfort Keepers Inc., Lafayette Place, Lexington Pilot Club, Crestwood Christian Church, Somerset Senior Friends.
Government Licenses
Is your organization licensed by the Government? No
Fiscal Year
Fiscal Year Start Jan 01, 2013
Fiscal Year End Dec 31, 2013
Projected Revenue $18,000.00
Projected Expenses $18,000.00
Spending Policy N/A
Detailed Financials
Expense Allocation
Fiscal Year201220112010
Program Expense$8,230$3,285$2,182
Administration Expense------
Fundraising Expense------
Payments to Affiliates------
Total Revenue/Total Expenses1.731.231.21
Program Expense/Total Expenses100%100%100%
Fundraising Expense/Contributed Revenue0%0%0%
Assets and Liabilities
Fiscal Year201220112010
Total Assets$11,613$10,717$10,160
Current Assets$3,413$2,517$1,960
Long-Term Liabilities------
Current Liabilities------
Total Net Assets$11,613$10,717$10,160
Form 990s
2012 990N
2011 990N
2010 990N
Capital Campaign
Currently in a Capital Campaign? No
Capital Campaign Anticipated in Next 5 Years? No
State Registration Yes
Comments
CEO Comments Our organization is entirely dependent on individual donations.  We have NO membership dues.  Program attendees have the opportunity to donate during each of the two monthly meetings.  The weekly exercise/yoga classes necessitate the approximately 20 participants' paying 5 dollars each session.  We facilitate and coordinate weekly aquatic classes at Cardinal Hill Rehabilitation Hospital, for which the 6 to 10 participants pay 5 dollars each directly to Cardinal Hill.  A 4-week course, Loud Crowd, also is offered by Cardinal Hill.  Many persons with Parkinson's Disease benefit from that course, which costs each participant 20 dollars.  If our organization could sponsor free of charge the exercise/yoga and aquatic classes, the financial burden would not prevent persons with Parkinson's Disease from participating in these extremely helpful activities. 
The major financial challenge of our organization is to increase awareness of Parkinson's Disease, and of this support group, in order to increase donations.  Opportunities for increasing awareness are hindered by limited funding.  April is Parkinson's Awareness Month nationwide but our funding for radio and/or television and print advertising is limited.
At the present, funding is not available to mount a capital campaign or to sponsor a major fundraising event for the public.  Our present financial state inhibits the organization in mentoring similar support groups in neighboring areas who have requested our assistance.  These comments make apparent the great need we have for increasing awareness and funding.
Foundation Staff Comments
This organization files the 990N, which contains no financial information. All financials were submitted by the organization.
Address P.O. Box 4424
Lexington, KY 405444424
Primary Phone 859 277-1040
Contact Email Keith284@twc.com
CEO/Executive Director All Volunteer
Board Chair Martin Ginocchio
Board Chair Company Affiliation Lexington Fayette County Urban County Government